So very sorry to hear about the macular degeneration. I hope they can find a way to slow it down and fend it off for as long as possible.
5 pounds was indeed a tiny premie back in the 40's. You are definitely a fighter.
Continued prayers and blessings to you.
Our middle child (DS, born in '92 - now 22 yrs. old) was a super premie. He came into the world at 1 lb. 4 oz., and spent 4.5 mos. in the NICU, before we were able to bring him home on a heart/apnea monitor that he was on for the first year. Lots of meds, and many other issues. Fortunately, he has been physically healthy for many years now. Although, he is on both the autism and Asperger's spectrums. He has issues with time/space, routines, etc..
I'm very familiar with premie eye issues, as well. While he was still in the NICU, he was diagnosed with premature retinopathy, and they did laser surgery to save his vision. Only about 5% of his peripheral vision was lost, and he has to have corrective lenses, but, other than that his eyes don't give him much trouble.
All that being said, we are very grateful. Awesome Dr.'s and nurses. Things could have been so much worse for him. There were so many other children, many born much larger than him, that never made it home.
He too, is a fighter.