MommytoMJM
New Member
Snarky is anther word for mean, snotty, etc...
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Cult of the Hugglers
- Thread starter Pongo
- Start date
MommytoMJM
New Member
Connor002 said:I forget...What is it that MJ has?
Fetal Alcohol Syndrome, Triplegic CP, epilepsy, asthma, feeding tube, autism and early onset schizophrenia (at least that is what they think the hallucinations are)
Fantasmic!329
Active Member
Sorry to hear that MJ is sick, Bonny. You have got to be the world's best mommy, with all that you do.
special *huggles* for Bonny and MJ :kiss:
*huggles* to all
special *huggles* for Bonny and MJ :kiss:
*huggles* to all
MommytoMJM
New Member
Connor002 said:Smaller words, please. :lookaroun
Fetal Alchol Syndrome = Brain damage from her birthmother drinking while pregnant, affects her judgement and impulse control (she has none of either) not sure of all of the other ramifications yet)
Tri-plegic Cerebral Palsy = affect her entire left side and her right leg, along with muscles needed for feeding and potty training (she will most likely never do either) it also makes her tire more easily, she has about 30 minutes of activity in her before she tires out and begins falling (this maybe becuase of a stroke in utero)
Asthma = breathing problems (tho less so here than in CA)
Schizophrenia = ususally kicks in in early adulthood, but both of MJ's birth parents had genetic schizophrenia, so MJ's got a huge chance of it becoming full blown...she has already started having hallucinations (auditory and visual)
Autism = affects her language (she only says single words, with the exception of phrases that always go together, like thank you for example) her vocabulary is very limited, she does some signing, but again, doesn't combine them, also affects her ability to relate socially (she is hyper social), her pain sense is very dulled, she has many repetitive behaviors, echolalia (repeats words over and over), injures herself and others.....
G-Tube = she has a tube that goes directly into her stomach, she takes all medicines, water and food (formula) through it, she eats nothing at all by mouth
Epilepsy = Seizures
Did I miss anything?
MommytoMJM
New Member
Fantasmic!329 said:
Awww, thank you Freddy.. I don't think I do anything that any other mother wouldn't do for her kids.
MommytoMJM
New Member
Ahhh, she is much cooler, and meds still down Yay!
Fantasmic!329
Active Member
Moms are the greatest. They can: bake really yummy cookies, help with homework, kiss any boo-boos, make you laugh when your sad, help you get better when you're sick, and so much more. I have a really great mom, and so does MJ!MommytoMJM said:
:kiss:
*huggles*
MommytoMJM
New Member
Connor002 said:I don't think so.
That's... a lot to deal with...
I really don't know what to say.
It is a lot to deal with, but I get it all back tenfold, I adore her and wouldn't be the same without her.
MommytoMJM
New Member
Fantasmic!329 said:
Aww, thanks Freddy! You guys are the best.
Glad to hear she's doing a little better... each minute takes patience... a lesson I'm fast learning with parenting!
MommytoMJM
New Member
Yeah, it sure does Jess.... waiting for DH to email me back, not sure I should put her on her feeding pump tonight...hmmmm, maybe I should just reduce the flow down by half or so....she does need fluids....
Uponastar
Well-Known Member
MommytoMJM said:
Bonny, I knew MJ had problems, but I didn't realize the extent till now.
I always believed that only special people get to have children with special needs. This is doubly true in your case, because you adopted MJ.
I admire you more than I can say.
MJ and you are both blessed to have each other.
MommytoMJM
New Member
Uponastar said:
Awww, thanks so much! MJ is a blessing and a half. What is sad to me is how many families siad no before we said yes and she is just the greatest kid ever. I mean, yeah, she has some severe issues, but man, when she learned to say *shus wu* (love you) a few months ago.....it was so awesome. With kids like MJ, every small gain is huge.
Fantasmic!329
Active Member
Hey Dot!!