They must still have them...No more free samples given at door at Ghiradelli in DS.
Great that the results were negative, but do they know what it was, then?So, last Monday afternoon we got a text that the kiddos were taking Emy to Dell Children’s Hospital. They were afraid she had had a seizure. Oldest DD has many years of working with and teaching young children, so has experienced this more than once.
They were all napping when they were awakened by Emy making whimpering noises, twitching, and rolling her eyes back in her head. In a follow-up text while they were at DCH, I asked if it just could have been some intense dream. She relplied that the doc also mentioned same, and didn’t see any evidence of it being any kind of classic seizure, but, referred them to a pediatric neurologist for further evaluation. She had an EEG this past Monday. Fortunately, this afternoon, all results came back negative...!!!!!!!!!!!
A pic of our adorable little Electrodehead Emy...!!!!!
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Yayy that would be awesome. Thanks for the heads up!
To be fair, it is summer down under.
I tell ya, this autism training we've had is making me see patterns, making me see things in a different way, and recognize behaviors, etc. I know my mom wanted the best for me, and she was trying to help me achieve my goals, but it had a huge psychological effect on me. I never felt like I was good enough for her, and I felt like if I was already doing my best, and my best wasn't good enough, then I was doomed to failure. There was just no way I could achieve at the level she expected. And now I see that in my daughter...she is SO hard on herself. And we've worked really hard to tell her that she doesn't always have to get 100% for every piece of homework and every test. She still usually DOES get really close, but she isn't nearly as bad as she was a few years ago. I worry that MY fears of inadequacy have rubbed off on her.
) I feel really bad about some of my reactions when he was younger...it really wasn't his fault. I've had to learn a LOT, and I have a better understanding of the effect my mom's parenting had on me and how I want to do things differently.
The comments from people that were there this week said the CM's are no longer giving them out.
Thanks. Same to your dd and ds. Safe travels to all.
They had a thing here last week on a news show and there was this bodysuit with like...electrodes or something on it. It measured how far apart every one of them was from each other to measure your body. Then you could order online with the size it gave you. Half the stuff the guy ordered didn't fit.
Great information. You know even kids without issues like autism think differently than adults, so I learned something here. We forget how we were when we were kids, so it can be easy to be hard on them for things as adults we expect to be common sense.I tell ya, this autism training we've had is making me see patterns, making me see things in a different way, and recognize behaviors, etc. I know my mom wanted the best for me, and she was trying to help me achieve my goals, but it had a huge psychological effect on me. I never felt like I was good enough for her, and I felt like if I was already doing my best, and my best wasn't good enough, then I was doomed to failure. There was just no way I could achieve at the level she expected. And now I see that in my daughter...she is SO hard on herself. And we've worked really hard to tell her that she doesn't always have to get 100% for every piece of homework and every test. She still usually DOES get really close, but she isn't nearly as bad as she was a few years ago. I worry that MY fears of inadequacy have rubbed off on her.
And with this training now we've learned to be more...not tolerant really, but I guess more productive. Like...DD forgot a workbook thingy she needed for a project. She had been working in a different room...not her classroom, when the teacher handed out this booklet for an upcoming project. She didn't have her backpack with her, so she set the booklet on the table and then forgot to grab it when she left the room. It was the last day before a vacation. I sent her back to the school to look in the room she had been working in....it wasn't there and she couldn't find her teacher to ask for a new one. So we went into "fix it" mode...we asked a classmate to scan in the pages of the booklet so DD knew what she had to do and could do the work and then put it in the booklet when she got a new one. It worked out. She felt bad enough about forgetting it in the first place...she hasn't done that since, and she learned what to do if it happens again...no need to panic, figure out how to get what you need.
Because with DS, sometimes the information he needed just got lost in his brain...it's not there. And you can't be mad at him for that, so you have to learn how to deal with it instead. So if he forgets that we said we would be at the grocery store and freaks out when he finds himself alone, what can he do to get what he needs? He now has our cell numbers to call us and we write down appointments and such for each person on the whiteboard so he can always look and see....Oh, mom's at the doctor. And if it's not on the board, he can call and say "I forgot where you said you are. When will you be home?" We've had to learn to be very patient and also very detailed...you have to put the dots really close together and you can't take it for granted that he should know how to figure it out for himself. Like...you can't just say "Go dump those cupcake sprinkles in the sink." You have to say "Go look in the sink. If there's something in it, take it out and then you can dump the cupcake sprinkles in the sink and rinse your plate, then put whatever was in the sink back." (Yes....we did learn that one from experience.
He is getting better now. He just has to be able to see the list. Common sense just isn't what we thought it was.
We were advised to hang up "how to" lists for daily things DS has to do, like when he comes home from school. Hang up backpack and coat on the coat rack, unpack backpack and put lunch/snack containers on kitchen counter, remove shoes and put on the shoe rack, etc. You would think after years of doing these things it would have become automatic. You would be wrong.
I got a desktop Disney calendar for Christmas, and this was today’s page!View attachment 341777
Yeah, they told us to do it in whatever way works for DS....pictures, keywords, sentences. Usually for little kids, they use pictograms. And the idea is that they learn to do it themselves. We kept saying every day "Don't forget to get your stuff out of your bag." "Don't forget to put your shoes away." "Don't forget to hang your coat up." and because we were telling him, he relied on us to tell him what he needed to do. The idea of the list is that they see it, and if they forget something, you point them to the list. So then by repetition, they learn to do it without you telling them, they internalize it, and eventually they won't need the list anymore. We've noticed with DS that the problem is vacations. Every time there's a vacation, he loses the routine and he needs the list again. We'll get there, but it will take some time. Good to start that early with A...she seems like a quick learner, too. With DS, he's got a "disharmonious profile" (That's a literal translation, so I don't know if that's what it's called in English) His IQ is too uneven. His verbal IQ is something like 123, but whatever the English word is for "performale" is 89. He can take in new information and retain it, remember facts, etc...but he can't apply it. He knows what setting the table is, but to actually DO it, he gets confused and can't remember what all he needs and where it needs to go. So the list keeps it organized for him...it's always the same. Same wording, same order of steps, etc. So he can internalize it better. He doesn't have to think of the steps himself, it's all there for him and he just has to follow it.
Yayyy! I love mine. It has nice facts each day. Congrats!
