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MJ's very, very ungood night...pixie dust please....
- Thread starter MommytoMJM
- Start date
DisneyInTN
New Member
Our best wishes to MJ! :wave:
Thank you all.....We will start looking ointo other palces (St Jude's, Shriner's, etc if we don't start gettiing some more help soon....
UPDATE:
MJ is still having what we call staring seizures 4/5 times a day/night and last night she had a seizure that affected her right leg, didn't go any further tho.....but it sure raised my blood pressure, sigh....sleeping with one eye open is affecting my mental state!
UPDATE:
MJ is still having what we call staring seizures 4/5 times a day/night and last night she had a seizure that affected her right leg, didn't go any further tho.....but it sure raised my blood pressure, sigh....sleeping with one eye open is affecting my mental state!
DisneyInTN
New Member
swincha said:
Also, the new Vanderbilt's Children's Hospital in Nashville is amazing. I had to take our 5 month old over there for a special corrective helmet and upon walking in I thought I was in one of Disney's All Star resorts. It is amazing inside. So much like Disney I got the bug to want to go back to WDW! :lol: With Saint Louis and Nashville, you certainly have a lot of options for specialists, if they are needed.
http://www.vanderbiltchildrens.com/interior.php?mid=183&PHPSESSID=eb03f5ede35e86f4ab8f6b2c1e826e49
http://www.vanderbiltchildrens.com/interior.php?mid=996&mode=&TopicID=64&search_topics=&GenCatID=&show=topic
:wave:
S_Grise said:
Pray...... a lot....we were so spoiled with the care we got in CA, this has been really hard here...
I know I shouldn't be taking what is happening over in WDW Theme Parks personally, but this on top of everything else? I think I am going to cry....
figmentmom
Well-Known Member
MommytoMJM said:
Now, I'm not a medical professional, but what you describe as "staring seizures" sound a bit like what a student of mine once had - petit mal seizures. She had a form of epilepsy, controlled by medication; if she didn't take her medication exactly as directed, she had seizures.
figmentmom said:
Yes, that is what they are, only becaue she can't see the neuro for another month they haven't medicated her yet....unless she has to go into the hospital with another Grand Mal, we are out of luck until July 13th and whenever they do her tests, sigh!
phichi17
New Member
My thoughts and prayers are with you and yours. I really hate that a child (or their family) has to go through such suffering.
As to the people on the other thread that were so rude to you, they will ultimately be accountable for their attitudes and comments. You know, what goes around....
God bless.
As to the people on the other thread that were so rude to you, they will ultimately be accountable for their attitudes and comments. You know, what goes around....
God bless.
Number_6
Well-Known Member
Well, my family and I live over in Waterford Lakes and find ourselves at the Parks quite often. We're even having dinner at Garden Grill(finally) on Father's Day. We're looking forward to that. We'd love to meet up with you and your family sometime, since we've found that we have more fun when we have others with us because we get to enjoy the reactions of other people as well as ourselves.
Also, don't worry about what people are saying in the other thread. If it was really that big a deal, then Steve would have deleted or closed it already. Obviously, not really something he's that worried about right now.
Also, don't worry about what people are saying in the other thread. If it was really that big a deal, then Steve would have deleted or closed it already. Obviously, not really something he's that worried about right now.
Captain Hank
Well-Known Member
Well, I gave a poster in the other thread a piece of my mind...and there were a lot of things I didn't say that would have gotten me kicked off this forum. I hope that things work out for you and MJ very, very soon. It's atrocious that a medical facility has a person in that situation waiting for that long for treatment. My thoughts are with you.
Thank you all so much for all of your support, I just can't imagine trying to get through this without you all!
Number 6, we'd love to meet your family! Sat we'll be at AK (for sure) and MGM (maybe) Sun and next weekend are taken up with other board meets, but we'll be back for three days for July 4th weekend.
Number 6, we'd love to meet your family! Sat we'll be at AK (for sure) and MGM (maybe) Sun and next weekend are taken up with other board meets, but we'll be back for three days for July 4th weekend.
Number_6
Well-Known Member
I'm very much wiped out right now having gotten 10 hours of sleep in the last two days, so I am taking tomorrow to rest and get a couple of small errands done. Sunday will mostly be at Epcot probably, and I will most likely avoid the parks on July 4th weekend, just because I know how bad it will probably be there. I might try to go to Red, White and Boom up in Altamonte, though. I think they still do that, right? Anyway, if it ends up being after the 4th, then that's fine too. I'm sure we'll meet up with you sometime.
Tom
Beta Return
I think I'm going to have to also restrain myself from posing in the "other thread" - my last few posts in there had much more text in them originally, but I thought I'd better censor myself and make a short, but to-the-point statement about a certain someone.
Anyway, I've read all about MJ and Mommy - and this whole thread has really gotten to me. It's such a shame to see a child suffer like this, and I really hope the docs can help her out. On the other side, it is SUCH a wonderful thing that MJ Mommy and Daddy have done, by being so unselfish and adopting a needy child into such an overwhelmingly loving home. What more could any kid, handicapped or not, ask for than to play at Mickey's place every single weekend?!?!?
Times might be tough, and people might be rude and harsh, but God is still going to shine on those who deserve it
Keep on chugging MJ and all!
Anyway, I've read all about MJ and Mommy - and this whole thread has really gotten to me. It's such a shame to see a child suffer like this, and I really hope the docs can help her out. On the other side, it is SUCH a wonderful thing that MJ Mommy and Daddy have done, by being so unselfish and adopting a needy child into such an overwhelmingly loving home. What more could any kid, handicapped or not, ask for than to play at Mickey's place every single weekend?!?!?
Times might be tough, and people might be rude and harsh, but God is still going to shine on those who deserve it
Keep on chugging MJ and all!
sheryl2007
New Member
We are definitely sending tons of pixie dust your way !! We have 3 children and I thank God each and every day that they were born healthy, as a RN I know what complications children can have, to care for a SNC is such a tremendous undertaking and you and your husband deserve a special place for being such good parents, if only every child, healthy or otherwise had such care this world would be a much better place!! God Bless you and your family, I think he already did by letting you find each other
diddy_mouse
Well-Known Member
after reading through the thread that was placed in the other forum...i just wanted to send a large amount of pixie dust your way! its very heartwarming to hear the affect that WDW can have on one individual. i wish you and your family all the best! :wave: