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MJ's Dance Party

mpoppins76

mpoppins76

Well-Known Member
rlaeromech said:
I LOVE THAT SONG, But I thought it was just the six flags commercial..:lol:
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Nope! It actually makes me think of the Disney Cruise I went on...it's the song they played at the BonVoyage Party when we left port. I danced w/ Goofy to it. :D

Have fun on your date, Rick! Make sure you do a Movie Report and let us know how it was. :)
 
J

jesserin

New Member
joanna71985 said:
Hey Jess. I am currently in the midst of a 5-day weekend!! How are you?
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YAY! That sounds very nice! :) We're doing well thanks!

rlaeromech said:
ok, that explains it... well, I gotta get back to work, I have a hot date tonight and I hope to leave early. Ya'll have a nice weekend!!!!
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Bye Rick! Have fun tonight! :) Talk to you later! :wave:

mpoppins76 said:
I think we could use a little of this:
http://www.youtube.com/watch?v=YRQMqv2X8dU

IT'S FRIDAY!!!! :sohappy: :sohappy:
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:lol:

Yeah... we had a dance routine to that in HS.... :lookaroun :lol:
 
MommytoMJM

MommytoMJM

New Member
mpoppins76 said:
Wow, Bonny. It sounds like you have the gift of a wonderful doctor. Your family continues to be an inspiration and you are in my prayers every night. Here's hoping for Andrew's time off! :)
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jesserin said:
Thank God for good doctors Bonny! :) That's a blessing...

Thanks for the update, we'll keep your family in our prayers as always Bonny... :kiss:
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rlaeromech said:
Hey Bonny! Good Doctors are a blessing!

What do you mean her diapers aren't paid for?
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Thanks Guys....

jesserin said:
MJ wears special diapers that are rather expensive... their insurance no longer covers the diapers, so it's an out of pocket expense they're hoping to get covered again soon.

(That's pretty much the gist of it right Bonny?)
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Yep that is it... 100 bucks every 2-3 weeks...that is 1/3 of one Andrew's paychecks

joanna71985 said:
I've been on Friday for 3 days now.:lookaroun
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My Friday is Monday.... :lookaroun
 
rlaeromech

rlaeromech

Member
one more thing!

My wife calls and we are talking and going over plans tonight, she is with her friend and my daughter. My daughter wants to talk to me so she gives her the phone, so I talk to my daughter...

Daughter: Hey Daddy, I'm being mostly good and a little bit bad, but I'm being good now (she always confesses)."

Then she is going on and then it gets quiet and she says.. real slow and loud and almost laughing.

"SOMEBODY TOOTED!!!!!"

Then I hear my wife's friends yell in the background....'DON'T TELL HIM THAT!"

Just wanted to share that with. Wish me luck tonight..


http://www.youtube.com/watch?v=o-6uXLkAJlc

:eek: :eek:
 
J

jesserin

New Member
mpoppins76 said:
Friday Dance Party USA (did anyone else used to watch that show? :lookaroun ) continues!! :sohappy: :sohappy:
http://www.youtube.com/watch?v=YZePJ0gC_yc
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:ROFLOL: LOVE IT. Cute movie too. LOL

MommytoMJM said:
Yep that is it... 100 bucks every 2-3 weeks...that is 1/3 of one Andrew's paychecks
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:o Stink. hopefully your doctors will have some good news soon...

mpoppins76 said:
Yikes! Did anyone hear about this?
http://news.yahoo.com/s/ap/20070215/ap_on_fe_st/hiccuping_teen_1

That's a really long time!
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:eek: That is AWFUL. I HATE having the hiccups. They hurt! And are SOOO annoying! I feel so bad for that poor girl... that is awful!
 
J

jesserin

New Member
rlaeromech said:
one more thing!

My wife calls and we are talking and going over plans tonight, she is with her friend and my daughter. My daughter wants to talk to me so she gives her the phone, so I talk to my daughter...

Daughter: Hey Daddy, I'm being mostly good and a little bit bad, but I'm being good now (she always confesses)."

Then she is going on and then it gets quiet and she says.. real slow and loud and almost laughing.

"SOMEBODY TOOTED!!!!!"

Then I hear my wife's friends yell in the background....'DON'T TELL HIM THAT!"

Just wanted to share that with. Wish me luck tonight..


http://www.youtube.com/watch?v=o-6uXLkAJlc

:eek: :eek:
Click to expand...

:ROFLOL: :ROFLOL: :ROFLOL: :ROFLOL: :ROFLOL: Kayden is TOOOO cute!!!! :lol:


From the sounds of that video you're in for a good weekend Rick... :lookaroun :lol:
 
mpoppins76

mpoppins76

Well-Known Member
rlaeromech said:
one more thing!

My wife calls and we are talking and going over plans tonight, she is with her friend and my daughter. My daughter wants to talk to me so she gives her the phone, so I talk to my daughter...

Daughter: Hey Daddy, I'm being mostly good and a little bit bad, but I'm being good now (she always confesses)."

Then she is going on and then it gets quiet and she says.. real slow and loud and almost laughing.

"SOMEBODY TOOTED!!!!!"

Then I hear my wife's friends yell in the background....'DON'T TELL HIM THAT!"

Just wanted to share that with. Wish me luck tonight..


http://www.youtube.com/watch?v=o-6uXLkAJlc

:eek: :eek:
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:lol: your daughter is THE cutest! Love her!
Um...the song, Rick? :rolleyes: <- That's me rolling my eyes.
jesserin said:
:eek: That is AWFUL. I HATE having the hiccups. They hurt! And are SOOO annoying! I feel so bad for that poor girl... that is awful!
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Me too! When I was in 3rd grade, our teacher taught us a trick to get rid of them: You take 9 swigs of water while you think of someone you have a crush on....at 30 years old I still use it and it works ever time :D
 
rlaeromech

rlaeromech

Member
jesserin said:
:ROFLOL: :ROFLOL: :ROFLOL: :ROFLOL: :ROFLOL: Kayden is TOOOO cute!!!! :lol:


From the sounds of that video you're in for a good weekend Rick... :lookaroun :lol:
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Could be wishful thinking!

Ladies, I bid thee farewell! After all Love Bites (Def Leppard - Love Bites [5:47] - Best Of [Limited Edition Bonus Disc] Disc 1 )
 
J

jesserin

New Member
joanna71985 said:
Oh, btw, Cinderella 3 is really cute (I am listening to the music video from it).
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Awww yay! I'm adding that to my Blockbuster list! :sohappy:

mpoppins76 said:
:lol: your daughter is THE cutest! Love her!
Um...the song, Rick? :rolleyes: <- That's me rolling my eyes.

Me too! When I was in 3rd grade, our teacher taught us a trick to get rid of them: You take 9 swigs of water while you think of someone you have a crush on....at 30 years old I still use it and it works ever time :D
Click to expand...


:ROFLOL: :ROFLOL: Nice Steph. LOL I'll have to remember that.
 
theladybadger

theladybadger

New Member
MommytoMJM said:
Neurology Update 2-15-07

Hi there all-

Well, we went to the Neuro yesterday, lots of news...I'll try to hit it in order...

MJ has gained over 15 pounds this year, this is not a good thing, that is more than a pound a month so we are looking at changing her psychiatric medication (the one for her hallucinations) from Risperdal to either Zonisamide or Seroquel we are doing the research to see which ones contain corn or not...

We have quite a few things now going on with her ears necessitating some changes. Her PMG (Polymicrogyria [brain damage]) is most likely affecting her hearing on the left side, she now has Auditory Processing Disorder and is also having very increased auditory sensitivities (we carry her *ears* with us everywhere now and she often wears them even in the house) because of this we are relying even more on her non-verbal communication models (sign language, PECS, etc) In an effort to help her more in the outside community, her doctor is writing to the local sign language service so she will be able to use interpreters more. She seems to be aware on some level of her inability to process auditory signals, I taught her the sign for *sign language* and she often uses it to tell me to sign rather than talk. She also will sign her name sign now when asked her name, she can sign MJ but can only say M. It is fascinating to watch her come up with ways to communicate alternatively.

The X-rays show that she doesn't have spina bifida, but Dr. Barr says she most likely has some other defect in that region that is not bony but is in the muscles, tendons, etc. So her symptoms mimic SB but are something else. She *does* still have S curve scoliosis. He is looking for a developmental clinic to take her on to refit her wheelchair seating, etc.

I talked with him at length about her CP and how it seems to be getting worse (CP is a static condition and shouldn't get *worse*) As it turns out, the PMG is the cause of her CP *getting worse* because PMG is so rare, it is really hard to predict the outcome of much of anything....sigh.

He also did some minor testing on her vision in her left eye, some peripheral stuff, she didn't even know his hand was there on the left side, so we were right in our suspicion that her vision has been compromised by the PMG, we need to see a pediatric Ophthalmologist to determine the extent of damage.

We dropped of Andrew's FMLA paperwork with him and once we get that turned in Andrew will be able to take off of work and make sure his job is kept. That will be a relief. We sure could have used that last summer when she was in the hospital.

We are still trying to get her diapers paid for, no dice on that yet...

We have another appt in March to discuss med changes and other things. Dr. Barr is really on the ball and I just love him and his office staff, they treat MJ like a Princess and are always so happy to see her.
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Wow, Bonny. That's a lot to handle. You and Princess MJ are definitely in my thoughts and prayers. I'll try to learn some sign language so I can communicate with her next month.
 

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