I wanted to bump this thread to share my recent experiences / frustrations.
For those that don't know, I have an autistic older brother Matt. He's in a group home, he has behavioral issues, he is who this program is designed around. He was eligible in the past and remains eligible now. We verified that this weekend on the video call.
I understand why Disney has made these changes, but I completely view this as an over correction. I recognize that there are 547 pages of differing opinions on this, but I wanted to now share my firsthand knowledge of the experience.
Our traveling party has typically been 5, 6 or 7 over the last 10 years. I have a 4 year old and a 2 year old, hence the variability. We've also occasionally been joined for a day by additional family members and prior to the changes earlier this year they could often be added as additional capacity in park at a Blue Umbrella / guest services. We all know now that this is no longer the case.
This upcoming trip has my two 76 year old parents, my 47 year old brother (The DAS guest), myself and my wife, and my two children. 6 ticketed guests and a 2 year old. Disney has limited us to 4 guests on the DAS standing by the "immediate family" description. I have tried to make the case that an expansion to 5 is necessary simply because certain 2 seater attractions require a minor guest to be accompanied by an adult and my brother would also need to be accompanied by an adult (5 tickets guests + 2 year old). That fell on deaf ears as well.
Honestly, none of that surprised me. The real issue I'm having with all this is that Disney will not talk with anyone unless they have valid ticket media. For a family dynamic like ours, that means spending $5K+ on tickets to see if we can work with the accommodations they're willing to provide. That in itself is unacceptable. The IBCCES approval process and subsequent 6 guest limit at Universal and Legoland do not face that same concern.
I tried framing this a few different ways, including the hypothetical scenario about my 2 year old being 3 (she turns 3 in April). Would we then see an increase to 5 guests? They won't comment on that until I'm within 30 days of a trip with tickets in hand for her and the other applicable guests.
My brother loves Disney, as does the entire family. I'm hopeful that our upcoming trip works well enough (hopefully the crowds will be light enough where this will be largely moot), but I'm not optimistic.
The last piece of this is that there's no real avenue for feedback. There is a general e-mail address for Disability Services and my interaction with that e-mail address has been form responses with a direction to return to the video chat conversation. It's circular and frustrating.