MJ's story...and Cody's... VERY LONG

MommytoMJM

New Member
Original Poster
Cody's Story, our angel.....

Our journey into adoption began with us thinking that we would adopt

children through the Santa Clara County Social Services System. In order to adopt in this county, you have to go through what is called a FostAdopt program. children that are adopted through the county begin as Foster children and when it becomes clear that they will not be reunified with their parents, they are placed into the county pool for adoption.
Having heard many horror stories about adopting through Social Services, we decided to go through a private Christian Agency to become licensed asFoster Parents. Our experience with this has been very good, for the most part.

We started the process in July of 2000. I was very ready to become a mom, so I had all of the paperwork filled out by the time we had our first class. We did all of the background checks, fingerprinting, child abuse indexes, gave them our driving and financial records, etc. In early September we completed all of our training, had all of our background investigation stuff back, we were ready to rock...sort of.

We got a call from Advent (our Foster Agency) explaining to us that we needed to get into the county's classes for adoptive parents soon because the laws were changing and any kids that they placed with us we may not be able to adopt if we weren't done with that class. Ok. so we filled out more paperwork and enrolled in more parenting classes...and off we went. Fast forward to October 27, 2000 we received a call that was a miracle.

Advent had a three day old baby boy who was Fost to Adopt, "could we pickhim up October 28 at 2 pm?" Could we? I grinned from ear to ear, I had heard so many stories about how hard it was to get infants and not to get my hopes up, that I hadn't, but here we were being presented with what was by all rights a miracle. The next 22 hours were a whirlwind of shopping, buying formula, setting everything up, and I couldn't stop grinning.

Saturday dawned and though it was gray and cloudy, the sun was shining here in our hearts. We drove to the hospital to get him, took his diaper bag, got to change him into his going home outfit, at last! I was a Mommy! Cody was our little miracle. He was so comfortable with us, he hardly everfussed, he was a joy to take care of. He stole our hearts with his little cooing noises and the way he just loved to be held. It was so perfect, too perfect in fact.

October 31 dawned, it was our anniversary and it was perfect, we had each other and Cody, all was right with the world. We went to Babies R Us and registered, we took Cody to his first pediatrician appointment , we were n heaven...and at 5 o'clock, our world came crashing down around our ears.

The social worker called and said that there had been a mistake, Cody was never Fost to Adopt, he was only supposed to be placed short term and we had to have him back to his mother by 8 pm. We were and still are devastated.

It is hard to believe how much one 7 pound human being can change your live and your heart. Being his mom and dad was the most joyous thing we had ever felt. It is as if our hearts have big holes in them where he should be. Our home also has a hole where children should be.

Cody, quite simply, taught us how to love.

And so we begin our journey into private adoption in the hopes that the next baby will be ours to keep. In the hopes of helping to fill our hearts and home. In the hopes that some social worker won't be able to just come along and devastate our lives. While we know that all adoption comes with risks, we just hope that this route will have less risks than the previous one.

Cody, wherever you are, we love you and are praying for you.

Mommy and Daddy

MJ's Story......

We moved to FL from the SF Bay Area in CA in March 2004.

We are the parents of a very special little girl. We adopted her at birth Feb. 6, 2001 (adoption was final 11/16/01). She has many special needs due to in utero exposure to way too much junk.

Marjorie has a g-tube now, but for the first 16 months of her life we used donated breastmilk for her (I tried to induce lactation, but I never could get any milk and she couldn't suck, so we had to resort to donated milk. I believe that the breastmilk is one big reason why she is doing so much better than the Dr's expected) We've always done some variation of co-sleeping, she has always been cloth diapered, we plan on homeschooling, I have always been home with her and for 2 years my husband was able to work at home and be with us too.

We moved into Brevard County because dh's parents lived here, then we belatedly learned it has terrible services for our sweet girl and DH's parents really aren't all that interested in being around us.... sigh. DH works the swing shift M-F 2 pm to 1 am sp he is available to take us to Dr's visits, therapy, etc...

I also am disabled due to Fibromyalgia, severe arthritis, migraines, TMJ and Sjogrens Syndrome. I was diagnosed a year after we got MJ. So it is a double whammy for us. It is a good thing that I had already decided to stay home and parent and homeschool Marjorie, because I would have had to do it anyway. I wasn't disabled when we adopted MJ, actually I became disabled as a result of adopting her.....long sotry, ask if you are interested...the upshot is, while we inteded to ahve a disabled baby, we didn't inted to have a disabled mommy....

Here is a bit about our little girl and her issues... it is a bit long and talks a lot about medical stuff (fair warning! LOL).

Our daughter was adopted at birth in Feb. 2001. She was born to a birthmother with about 12 different risk factors, among them were alcoholism, prescription and street drug addiction (the scripts were ativan, dilantin and trazadone, particularly bad), advanced maternal age, poor health, chain smoking, homelessness, no prenatal until we entered the picture at the beginning of her third trimester, she was developmentally delayed and borderline gestational diabetes (as if the rest of it wasn't enough! LOL) MJ was a 36 weeker.

Marjorie (the "baby" she'll always be my baby even tho she is a toddler now) has severe CNS delays, some dysmorphology and had retarded growth for her first 14 months (until we had a g-tube put in, a fundoplication done [a surgery to wrap part of her tummy around her esophogus] and figured out that she was allergic to corn.). She has Fetal Alcohol Spectrum Disorder, Triplegic cerebral palsy (affecting mostly the left side), dyspraxia, Hyposensitive Sensory Integration Disorder (the more rare of the 2 types), she eats zero food by mouth, talks very little (apraxia) but does do some minimal adaptive American Sign Language, Global Dysphagia, she also has a very high probability of becoming Schizophrenic when she is older [both of her birthparents have genetic Schizophrenia] and now this seizure thing...whatever that is.


We consider ourselves very lucky, although she does have quite a few issues, she is so much better off than we were told to hope for. She is a complete joy to be with and like almost all special needs kids has the greatest spirit even through all of her therapies, hospitalizations, etc. She will most likely never be able to leave home.
I didn't want to try to adopt again after losing Cody....Andrew talked me into it. We both knew we wouldn't put any restrictions on the type of child we would adopt (other than they not be terminally ill) We saw the attorney to talk about adopting on Nov. 16, the birthmother was 6 months pregnant and had just been discovered, we don't know exactly what transpired before they found her....The attorney had been looking for a home for MJ for a while and couldn't find one, he was scheduled to go tell the birthmother on the 17th that he couldn't find a home for her baby and htat she would haveto go into Foster Care....60 families said no to her (boy did they miss out) We found out the day before Thanksgiving that wewere going to be able to adopt her....what a miracle.

I truly can't imagine my life without her, every step is a mile with her, although I have to say it is harder than I ever could have imagined. We had hoped to adopt more kids, but that is looking impossible now....With both of us Disabled and only Andrew to take care of us, life is tough, we have had to give up a lot, I am glad that we didn't have her younger, we couldn't have done it, of that I am confident.

Please feel free to ask any question at all, I am not shy about tlaking about her, me or our disabilities, especially if it helps people to understand.....
 

SIR90210

New Member
Oh wow, I never realized you had done so much. People like you are the true heroes of our society. How did getting MJ disable you and what are Fibromyalgia, TMJ, and Sjogrens Syndrome?
 

maelstrom

Well-Known Member
Wow, what a story!

It was very heartless for them to make a mistake with Cody. How the **** do you make a mistake like that?! Grr.

MJ sounds like a great little girl.

I'm such a fan of adoption. My little cousin is adopted and he's a great kid. My aunt adopted him when he was just an infant. He loves Disney, especially Mickey and pirates. He asks on an almost daily basis, "Mommy, are we going to Disney World today?" He's four, by the way, and has only been to WDW once.

I wish you all the luck in homeschooling MJ. I homeschooled myself through 11th and 12th grade and I wish I had found out about it sooner. I recommend it to everyone I know. I'm sure you've read a lot about it already and probably have a game plan, but if you need any help with that, don't hesitate to contact me.

MJ is very lucky to have such a caring family!
 

Slipknot

Well-Known Member
SIR90210 said:
Oh wow, I never realized you had done so much. People like you are the true heroes of our society. How did getting MJ disable you and what are Fibromyalgia, TMJ, and Sjogrens Syndrome?

My (addoptive) mother also has Fibromyalgia. Hard to explain it when you don't have it, but I'll try.

It is a muscular/skellatal disease that mainly affects the connective tissues (tendons and such). The connective tissues are hit with lots of pain (stabbing, shooting, burning, etc.) It is associated with fatigue, and lots of it. Sometimes you feel great and sometimes you fell horrible. My mom says that when it is really bad, it feels a lot like flu symptoms. Sometimes when you do regular everyday stuff (walking for example) it can hit out of the blue. The first year of my mom's diagnosis, we all (my father, brother and myself) would always ask if she was ok when she got a pain. After many years of her with Fibro, you learn which ouch is Fibro and which is not. I hope that is mostly right. MommytoMJM, if I have missed something please let me know.
 

S_Grise

New Member
Warning: Mush Containing Post!

Bonny, my heart is swelling with love for you and your family as I read your story. I agree that the "mix up" with Cody is reprehensible to say the very least. What truly special, exceptional and big-hearted people (words are failing me here) you and your husband are to open your hearts and lives to a second chance, let alone to a disabled baby. Inspirational and courageous.

My parents adopted two children; I'm one of them. Both of their adoptions were of healthy infants. It's always amazed me that adoptive parents have to go through all this training and screening when anyone can just "have" a baby. It's like that line in Parenthood: "They make you get a license to drive a car, but they let anyone have a kid" (or something like that).

As for my own story, I did the "natural" parenting thing, too. I was a La Leche League leader, shared sleep, practiced "attachment style parenting", and home-schooled my kids when they were elementary aged. I've never regretted a single sacrifice or single moment, despite the criticism it often invoked. I couldn't agree more with you about all your choices, especially with a "special needs" child. And YES, all that breast milk certainly DID get MJ off to the best possible start. Bravo to you for the extra work that involved for you and bless all the milk-donating mothers in the world.

I think you are so brave for telling your story openly and for living your daily life with such dignity and love. I'm honored to be in your cyber-presence.
Warmly, Sharri
 

MommytoMJM

New Member
Original Poster
Slade covered the Fibro angle well....Sjogren's Syndrome is another auto immune disorder that causes joint pain and lack of fluids in the body, dry mouth, heat sensitivity, etc... the type of arthritis I have is auto immune arthritis, common with Fibro, same pain and swelling, etc...but not bone damage, TMJ is a jaw disorder and mine was caused by being hit in the face by my father, 1st boyfriend and first husband.....(I haven't been hit since '93, I spring the abuse cycle)

As far as how adopting MJ caused me to be disabled.....

When you adopt, you need to have a TB test (along with a million other tests) if you have EVER been exposed to TB, even coughed on in a grocery store your skin test will be positive, mine was....Chest Xrray was negative, but in order to contine the adoption proceedings I had to take a prophylactic drug called Isonizaid for 12 months. A year after MJ was born, I was feeling awful, run down, etc...thought it was just having a new baby, particularly a special needs one.....but it wasn't...that is when I was diagnosed. Turns out that Isonizaid has been linked to triggering auto immune disorders, which almost all of my problems are.....

On a good day I feel like I have a mild flu, on a bad day I can barely move...and Florida isn't a state with good pain management or recognition of auto immune problems, sigh.....

All of your responses have brought me to tears. I adore MJ, but things have been sooo hard since we moved here, I have been really having a hard time, having you all in my corner helps so much....Thank you......Just Thank You.....
 

S_Grise

New Member
MommytoMJM said:
Turns out that Isonizaid has been linked to triggering auto immune disorders, which almost all of my problems are.....
I did NOT know that. Someday they are going to understand auto immune disorders so much better than they do now. My 15 yo daughter has Linear Scleraderma, another auto immune disorder. Apparently this type can be triggered by bodily trauma. In her case, she had a very complicated appendix rupture a year prior to her diagnosis of Linear Scleraderma. Not to scare anyone but, the fact is, ANY of us could have the gene for an auto immune disorder hiding in our bodies and it just takes the wrong circumstance to "flip the switch". Kind of makes you think.
 

MommytoMJM

New Member
Original Poster
S_Grise said:
Not to scare anyone but, the fact is, ANY of us could have the gene for an auto immune disorder hiding in our bodies and it just takes the wrong circumstance to "flip the switch". Kind of makes you think.


Yup, absolutely true...I was very healthy....

I was emancipated (divorced my parents) at 14. Worked full time, took my GED (one of the highest scores in the state) got two college degrees and started a computer training company, I was making a really good living, even when I cut back to be with MJ.....now that I can't work anymore, my life is VERY different....I wouldn't trade MJ (even to be healthy) but I would have done some things very differently if I had known I would end up disabled ba few years alter....
 

BonzoAPD

New Member
MommytoMJM you are truely an inspiration. You and MJ have been through so much yet you have such a positive attitude. It is horrible what the agency did to you and your husband with Cody. I can't even imagine how horrible that must have been. Even after that you still had enough room in your heart to go an adopt a child that you knew would have tons of problems. You and your husband are truely angels on earth. I will keep you, MJ and your husband in my prayers.

-Brian
 

lawyergirl77

Active Member
MommytoMJM, I face a lot of ugliness in my life, but it is stories like yours that make me realize that there is true beauty on this Earth and unfathomable courage in the face of adversity. Your story is incredibly touching and you and MJ will be in my prayers.

You and your family truly are an inspiration! I feel hope for this world simply because people like you do exist...
 

DisneyInTN

New Member
MommytoMJM, your story is amazing. I wish I had an ounce of the strength and determination that you have. Whoever thought miracles couldn't happen should read your story because it appears to me that you, your husband, and MJ appear blessed beyond words to have each other. You and your family will be in our prayers.
 

figmentmom

Well-Known Member
MJ is a very, very lucky little girl. I can't imagine the challenges you face on a daily basis, but you have lots of friends here. Keep us updated on her progress - and yours, as well!
 

MommytoMJM

New Member
Original Poster
BonzoAPD, Lawyergirl77, DisneyinTN and figmentmom....thank you so much for your kind words, I refer back to these threads often when I am sad or MJ has a seizure or I just need a pick me up, you all are sooo appreciated.
 

Erika

Moderator
Truly inspirational- God bless your family!

I also want to congratulate you on your new start as of '93. I know firsthand how hard it is to do that and I know that most people can't understand that. (Like you I eventually found & married an angel, no more drama for me.) I have arthritis from prior injuries but weight lifting and a move to a drier climate have helped that immensely. Have you ever tried visiting somewhere less humid? Do you notice a difference? I am so happy that you have been able to build this beautiful life for yourself, despite the trials that have come along with it. I know a couple of people who suffer from fibromyalgia and I have seen how painful it can be. I wouldn't wish that on anybody.

Most of our patients back in Chicago, including abuse victims, who have problems with their TMJs (for those of you who don't know, TMJ stands for Temporo Mandibular Joint and we each have 2, one on each side) have found some success after seeing an oral surgeon. Is there just nothing they can do? If so I am sorry because I have seen how awful that is. :(

I take it your headaches are caused by the combination of arthritis, TMJ disorder- does fibromyalgia cause them as well? Or are they true vascular migraines? I've had to lock myself up with an ice pack and a muscle relaxer many a time. I hope someday you will be able to find some relief. I know a lot is still unknown about fibromyalgia. Let's hope they can get some answers soon.

You three are very lucky to have found each other. It's funny how life works, isn't it? ;) I wish you all the best! Good luck with everything. :wave:
 

tigger248

Well-Known Member
Wow, you're story nearly brought tears to my eyes. God bless you all! You've overcome a lot and still manage to look at the bright side of things rather than focusing on the negative. MJ is so lucky to have such devoted and loving parents! I'm so sorry about Cody too. That's a heck of a mess up and must have been absolutely heartbreaking. I just think it's sad about how so many families turned her down. Even though I (hopefully) will be able to have children, I've always been fond of adopting a needy child. My brother has spina bifida and the thought has crossed my mind to try to adopt a child with spina bifida who may otherwise have a difficult time finding a home. Your story is an inspiration. Thoughts and prayers are headed your way and I hope that the cause of MJ's seizures can be found and that they can be stopped.
 

Erika

Moderator
tigger248 said:
Wow, you're story nearly brought tears to my eyes. God bless you all! You've overcome a lot and still manage to look at the bright side of things rather than focusing on the negative. MJ is so lucky to have such devoted and loving parents! I'm so sorry about Cody too. That's a heck of a mess up and must have been absolutely heartbreaking.

I agree- I can't even imagine what that must be like. I come from the town of "Baby Richard" (some of you may remember that horror story) and while anybody can make a mistake, in a situation like this the effects are just so devastating. I can't begin to comprehend the courage it took for you to give adoption another shot- but what a grand payoff when you did!
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Iakona

Member
MommytoMJM said:
Yup, absolutely true...I was very healthy....

I was emancipated (divorced my parents) at 14. Worked full time, took my GED (one of the highest scores in the state) got two college degrees and started a computer training company, I was making a really good living, even when I cut back to be with MJ.....now that I can't work anymore, my life is VERY different....I wouldn't trade MJ (even to be healthy) but I would have done some things very differently if I had known I would end up disabled ba few years alter....

WOW. My migraines stop me in my tracks if I don't take something so i can't even imagine piling the rest on top. The fact that you deal with all your health issues and still have the energy and love to take care of MJ makes you a true hero.
 

MommytoMJM

New Member
Original Poster
:) Thanks guys, All moms are heros! My life was so different before MJ, but Iwouldn't trade her for anything. Iakona, I have had my migraines since I was 10, so I am pretty good at dealing with them, sad to say.

Erika-The humidity kills me, we lived in CA until a year ago, things there were much better for us all around, but now we're here and there isn't much that can be done about it, so this is what we do. I have several types of migraines, true vascular, TMJ/arthritis and ones from the Fibro, they all suck.... :( I used to have a Chiropractor and pain management Dr in CA, but have neither of those here. Sigh... oh well....

Kristin-thank you for the kind words, losing Cody was awful beyond words....I still miss him every day. The hardest part right now is that MJ really wants a sibling and we have no way to make that happen.... :( Unless the Extreme Home Makeover we are being nominated for comes through, then maybe we could.....but I am not holding my breath on that one, they get a ton of applications everyday...
 

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