Going to Disney with MS

[Mia319]

I was just diagnosed with MS this weekend. Because it is so unpredictable and so new to me I have been having a lot of thoughts / concerns about our upcoming trip in Sept.

Right now i still have good mobility and all, but it seems that new things happen everyday and i never know what to expect. i was just wondering if anyone on these boards has MS and what your experiences in WDW have been like.

i've already realized that i might need to rent a wheelchair or take more breaks, or whatever, i don't know i guess i'm just nervous because i don't know what to expect, this is all so new to me!

any advice would be greatly appreciated!

 

[maryszhi]

i know somebody with ms. they said to take it slow, drink lots of liquids, take all your meds, rent a wheel chair in case you need it, and just be careful to not push you self
i hope you have a wonderful time

 

[OhioDisneyLover]

My cousin was diagnosed with MS about 5 years ago. She is still mobile but over the last year she has started to use a cane and the only time she uses a wheelchair is when she is traveling and going through the airports. The one thing that she cannot take is the heat. You may want to talk to your doctor before you go to get some guidance.

 

[queenie0888]

Hi:wave:, I was diagnosed with MS 1 1/2 years ago. My family and I go to Disney alot (one of the perks to living an hour away ). I had some of the same concerns that you do. I was always the one my hubby and kids had to keep up with. Now I just pace my self. When I am feeling fatigued that is a good time to sit and do some people watching and have a cold drink. The most important thing is to listen to your body. When you need cool air go on a ride with some AC, when you are feeling tired take a break. I have not needed to rent a wheelchair or use a cane. I just go at a reasonable pace. MS has not influenced my times at Disney at all, if anything I cherish every moment even more. Hope this helps and ENJOY!!!!!!

 

[RiversideBunny]

Who am I to give advice to someone with MS?

I would say this, though-
Go while you can. Go.

Good luck.

 

[IMPoppins]

Hi Mia 319:wave: I was diagnosed with MS in 2003. I have been to WDW many, many times since then. I have traveled to Orlando with both Avonex and Rebiff. If you stay at a value resort, they will provide you with a refrigerator to keep your medicine cold. It is free of charge. Because MS is different from person to person, it is hard to know what will bother you and what won't. September is still hot so keep hydrated and take breaks. Rent a chair if you need one. Listen to your body. Although I have had no real problems since my diagnosis, it's always there in the back of my mind. I am currently pregnant with our third child - something I wouldn't have thought about when I was first diagnosed. Hang in there and have a great time in WDW!!!!

 

[slackers]

I too have been diagnosed with MS this year and am visiting WDW in December. To be honest I am glad that I have something to focus on and have been planning like crazy
I am looking to pace our visits to the parks, taking two visits to each at least! Luckily it won't be too hot as I find this makes my symptoms worse :veryconfu
I'll be interested to hear how you get on. Keep positive :animwink:

 

[Mia319]

thanks for all the advice. i think i'm just more scared than anything... but this will be a great way for me to experience the parks in a new way!