Autism and WDW

Lokheed

Well-Known Member
Original Poster
I've been lurking at wdwmagic.com for months now (for reasons which will become obvious shortly), and just finally registered on this board. I thought I would share a story with you.

My son, Benjamin (often referred to as the mancub), is autistic. We first began to notice something was not normal at around nine months old when he did not begin talking like most kids. By twelve months we *knew* something was wrong. After several months of testing, he was diagnosed as being autistic. By age 5 he was still not speaking any recognizable words, although he had picked up some basic sign language. Then came the first breakthrough...

He had always loved watching Disney films, especially Fantasia and Jungle Book. One day when he was five I was singing "Bare Neccessities" to him. He was watching me intently, and I stopped halfway through a lyric... and he filled in the next word. His first spoken language came courtesy of Disney, and that has been a huge lever ever since.

He is nine years old now, and last year we took him to WDW for the first time. We were pretty sure he would lke it, but we were afraid he might be overwhelmed by too much sensory input. Boy were we wrong. For five straight days, Ben was in heaven. I have never seen him so absolutely grounded and focused for such a long period of time. There is something about the completely sculped environment, including the background music, that connects with him. We went again earlier this year and witnessed the same effect.

After years of searching, we have finally found a lever big enough to move his world. I am fortunate enough to work as a software developer, and my company has no problem with me working remotely. At the end of July we will be moving from Seattle to Orlando so that we can make use of WDW as one huge therapy environment. If there is one place on earth I can imagine Ben growing up, getting a job, and being able to function as an independant adult it is at the Magic Kingdom.

The Magic Kingdom, indeed -- it certainly has been a miracle to our family.
 

guwag

Active Member
My mother works with autistic children and those with learning difficulties and has mentioned before of one autistic child that went to DLP and got so immersed in the place that he didn't want to leave - can't really blame him though :)
 

figmentmom

Well-Known Member
If you haven't already seen them, there are a couple of threads already about autistic children and WDW that you might find interesting. That's such a great story - glad your son enjoys Disney so much, and that it has provided such a terrific means of communicating with him and exciting him!
 

mkepcotmgmak

Well-Known Member
that really is a great story! my nephew went one year when he was about 6, (he too is autistic) and he was not very comforatable with the parks. it was too much for him to take in, BUT DISNEY on the other hand was prepared. on main street where first aid is, there is a place where mothers can take autistic children who do not enjoy the hussle and bussle of WDW, and there are soft color on the walls, and not so much to take in, just very relaxing. after he calmed down a bit, they tried again, and I guess that room had pixie dust in it also, because he enjoyed the REST OF THE EVENING! He was SO amazed with Cinderella's Castle!
 

KathyG/poohbear

New Member
That is so awesome. I think you should mail a letter like your post to WDW guest relations. I think they would like to hear your story. I hope you have a great life in Orlando and the parks continue to help your son. Take care.
 

Main Street USA

Well-Known Member
Thanks so much for sharing, Lokheed. It's always great to to hear stories about the magic of Walt Disney World, especially, when the magic is real.;)
 

tiggerlover1971

New Member
Originally posted by KathyG/poohbear
That is so awesome. I think you should mail a letter like your post to WDW guest relations. I think they would like to hear your story. I hope you have a great life in Orlando and the parks continue to help your son. Take care.

I agree with Kathy you should write a letter to them they are always hearing negative stuff a little positive stuff would make them smile I am a subsitute teacher and last week I subbed in an autistic pre k they are so sweet and one of them all day was reciting elmos world word for word in elmos voice I think that its wonderful that you are moving close that he will be able to experience a little magic in his life
 

netenyahoo

New Member
That is aso winderful that he was so comfortable at the park and enjoyed it so much! That will be great for him to go to the MK whenever he wants. I also agree that you should write a letter to WDW about what happened.
 

EmeraldDolphin

New Member
Wow... what a heartwarming testimony! Reading this post definitely made my day!! :) :) I agree that your story should be sent to WDW... and even the Disney Magazine!! I bet a lot of people would love to read all about your wonderful son Benjamin! Enjoy living near WDW! That's awesome that you are able to make that move.
 
Hi there!
My 10-year-old son also has Autism. Disney was one of the first connectors for him, as well! We took our first trip there when he was five and he absolutely loved it! I was also worried that the sensory input/stimulation would be too much for him, but found that as long as he was allowed some "stim" time and had some favorite creature comforts around him, he thrived in the Disney magic! Since then, we have gone back every year. We just returned on Sunday the 13th from our most recent trip. The Guest Assistance Pass helps a lot (though not as much as it used to) and we were able to stay for 9 days. For the most part, the CMs were wonderful, but we did encounter more than the usual number of CMs that weren't very helpful. I think because my son "looks normal" they had a hard time understanding why we had the pass, even after I explained. One actually said to me "The line isn't that long. He can handle it," when the posted wait was 40 minutes! For the most part, though, CMs were helpful and the Disney magic lived on...even got picked to participate in a few things, like Belle's story at MK and the Festival of the Lion King at AK!
Glad to hear someone else has found that Disney could be such a powerful tool in reaching their child. My son cried when he realized it was time to leave WDW, but we're already planning our next trip!
Thanks for the post!
:sohappy:
 

Lokheed

Well-Known Member
Original Poster
On both of our previous trips we did not get the special pass, since part of the excercise is to help him learn social norms. The very first line was the hardest (Snow White's Scary Adventure) because he didn't know what the payoff was. As soon as we got off the ride he immediately started looking for another line to stand in. We use the Fast Pass system as much as possible, and that seems to be enough for him.

We've only really had one horrible day in the park with him, and that was on our second trip to Epcot. He had been panicky about water rides that trip, and even got upset on the ride in Mexico. Given how upset he was getting, we decided to skip the Maelstrom in Norway even though he had really liked it the last time. He got progressively more and more upset as we walked the World Showcase and started begging us to leave. There was no point in fighting it, so we let him lead us out of the World Showcase and expected him to take us right to the gates. Instead, he immediately looped around and took us back to the start of the World Showcase and then took us directly to Norway. We went on the Maelstrom and he was perfectly happy! Unfortunately, he is also convinced that the only way to go through the World Showcase is clockwise, so we had to walk the entire circle again....
 

figmentmom

Well-Known Member
Originally posted by Lokheed
Unfortunately, he is also convinced that the only way to go through the World Showcase is clockwise, so we had to walk the entire circle again....

Believe me, I am NOT laughing, but that is so typical of some of the autistic students I have in my elementary music classes! They can be a real challenge, but they can also be the most rewarding students I see all day!
 

Lokheed

Well-Known Member
Original Poster
The last time we were in the park I took pictures of the entrances to the different attractions to make a PECS book for him. He has been carrying it with him every since, paging through and pointing out his favorite rides. He can name most of them as well. He seems to have a real love/hate relationship with Splash Mountain. He keeps listening to that track on the CD we got him, and pages through books to find pictures from it, but when we took him on the ride last time he totally freaked. I think he knows its scary-but-safe, and is trying to psych himself up to riding it. Then the big drop comes, and.....
 
Originally posted by Lokheed
On both of our previous trips we did not get the special pass, since part of the excercise is to help him learn social norms.

We don't use the pass for EVERY ride; just the ones that have long waits or when I can sense there will be difficulties. My son is on the higher end of the spectrum (recently "re-diagnosed" with Asperger's Syndrome). He's very verbal, but still has a lot of social difficulties and has been known to have an all-out meltdown in line. I am certainly used to handling them, but the other guests seem - understandably - quite upset when my son is flailing about and inadvertently whacks their child! Also, on occasion he forgets the personal space boundaries and will do really unthinkable, inappropriate things, such as pick at the dry skin on the foot of the person waiting in line ahead of us. Believe me, you'd rather we were in the other line! Just in case... Anyway, the pass allows us to use the Fast Pass lane at the attractions that offer that feature, and most people don't even notice that we are using a pass rather than the Fast Pass. If people notice, or give us funny looks, I always take the time to let them know the reason for our pass. A little education goes a long way! Sometimes I feel guilty about using the pass, and think that it must be hard on ANY child to wait in those long lines, but then I remember that every day is a struggle for my son. This year has been an especially difficult one. This is the one time of the year that he gets a break!
:D
 

Lokheed

Well-Known Member
Original Poster
I know exactly what you mean. I can't tell you how many times I have just had to sit down with him on the floor in the middle of a store to calm him down and get him to focus. To their benefit, most people who see this are pretty supportive even when he is screaming and flailing about. I get the occasional evil glare or snide comment from passing adults, but after eight years I have pretty much learned to shrug them off.

I once had a sweet little old lady start scolding me in a McDonald's play area. Ben had been making a dash to steal the french fries off of a stranger's table, and I used my most authoritarian voice to say, "Benjamin stop!" He stopped dead in his tracks, as I expected, but the little old lady glared at me saying, "You be nice to that child! If you didn't yell at him like that, he would behave!"

I tried to patiently explain to her what was really going on, and she didn't want to hear any of it. I finally gave up. Spend thirty seconds around an autistic child and if you have an ounce of intelligence you will see that they are not "normal". If someone doesn't want to bother to understand, at this point I just don't have the energy to disabuse them of their illusions.
 

tiggerlover1971

New Member
in the class that I subbed a couple of the parents had trouble with thinking their kids are "special" they thought their kids acted truly "normal" that was the sad part
 
Originally posted by tiggerlover1971
in the class that I subbed a couple of the parents had trouble with thinking their kids are "special" they thought their kids acted truly "normal" that was the sad part
I'm not sure what exactly you mean by that? That the parents of children with Autism thought their kids were "normal" or the non-disabled (neuro-typical) children. Hmmmm...
Who is to say what is "normal"?
 

Lokheed

Well-Known Member
Original Poster
Originally posted by disneyfanmom
Who is to say what is "normal"?

Well, for starters "normal" nine year olds are not still wearing diapers because they don't fully understand the need for potty training. "Normal" nine year olds won't just randomly walk into a neighbor's apartment and sit down on their couch and start watching tv. "Normal" nine year olds might watch the same video over and over again, but they probably won't try to watch the same 30 second clip over and over again for hours on end. The list goes on and on.

But on the flipside, Benjamin is my only child. It is very easy for me to sometimes forget that some of his mannerisms are odd when compared to other children his age. For that matter, I sometimes have to really stop and analyze whether something he is doing is just normal kid behavior. I have no real barometer to compare it to, so I could easily see myself thinking something he does is normal kid behavior when it really isn't.
 

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